The Ivers Fam: July 24th !!

Wednesday, July 30, 2008

July 24th !!

Dylann eating mud

Presley and Samantha

Samantha

Samantha and Presley waiting to go on the boat!

Dylann waiting to go in the water

Samantha posing with her tube

Shane looking so happy!! He hates me taking his picture!!

For July 24th we decided to close the pizza store so we could have the day off and have some fun! We went to deer creek with Jill and her kids and Shane's parents and his brother. Dylann is my little fish and loved the water she is fearless! Presley would not go in the water but she loved going on the boat. Samantha loved both! It was really hot and of course I never put sun block on till it's to late and we all got a little burned! We had a blast!!

4 comments:

Brandi, Dan, L and B said...: This looks like so much fun. I don't think Lukas would go in the lake. He likes to swim at the pool though. Do you guys own a pizza store? I don't really talk too to many people from Orem. I sometimes talk to Maegan Draper (now Martin) and I hung out with Suki for a while after we graduated but we lost touch in the last year and a half or so. I did see Ruth Howe (Nielson)at the pedatrician office. She has a baby boy that was four months then so probably 7 or so now.How about you?; August 7, 2008 at 8:40 PM
Jill Johnson said...: Love the pictures!! Shane looks like he is having a BLAST!!!; August 11, 2008 at 3:02 PM
Kaydee said...: Your blog is so cute! It looks like you guys had a great time on the boat. Your girls are adorable!; August 11, 2008 at 3:47 PM
Unknown said...: I love your stick figures!! Sorry I posted under Bailey's name! Oh Jeff has your cd it is WONDERFUL!!! Hey you need to comment on my blog!!! BIOTCH!!; August 14, 2008 at 9:18 PM

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My Girls Genetic Disorder Tyrosinemia Type 2

Type II tyrosinemia is caused by a deficiency of the enzyme tyrosine aminotransferase encoded by the gene TAT. Tyrosine aminotransferase is the first in a series of five enzymes that converts tyrosine to smaller molecules, which are excreted by the kidneys or used in reactions that produce energy. This form of the disorder can affect the eyes, skin, and mental development. Symptoms often begin in early childhood and include excessive tearing, abnormal sensitivity to light (photophobia), eye pain and redness, and painful skin lesions on the palms and soles. About half of individuals with type II tyrosinemia are also mentally retarded. Type II tyrosinemia occurs in fewer than 1 in 250,000 individuals.
Dr Longo informed us that there are less that 100 cases of tyrosinemia type 2 reported worldwide. I have four of them.. I am so thankful that Presley was diagnosed when she was (at 13months) and that Sam, Dylann and Hadley were diagnosed at birth. They are on a low-protein diet and are doing great!!