The Ivers Fam: Halloween Pictures

Friday, November 7, 2008

Halloween Pictures

We took the girls trick or treating around our neighborhood for Halloween. Presley was a scary Vampire(Shane did her make up,that's all I'm going to say!), Samantha was of course Cinderella, and I finally finished Dylann's Tu Tu so she was a ballerina instead of a devil like I had planned. It was lots of fun taking them out. Dylann held on to her pumpkin bucket the whole time in the stroller and Pres and Sam taught her how to say trick or treat it was so cute! Now she just says treat cause that is all she wants to eat is candy!! I love this time of year! Shane and I started dating NINE years ago, holy crap that's a long time!!

2 comments:

Matt. Tara. Addi. Roslyn. said...: Your tutu turned out so stinkin cute! I made one for Addi but it's way too big for her right now. I love the halloween costumes. Hope all is well!!; November 16, 2008 at 4:35 PM
Fun Utah Mom said...: Hey this is Shanes cousin Nicole.I hope you guys don't think I am a crazy blog stalker but I was just curious to see if any of my cousins had blogs so I put in Ivers Family and your blog came up. Maybe I am a crazy blog stalker. Anyway your pictures of your girls are so cute! And if you want to check out our blog it is njlouisiana.blogspot.com; November 17, 2008 at 11:23 AM

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My Girls Genetic Disorder Tyrosinemia Type 2

Type II tyrosinemia is caused by a deficiency of the enzyme tyrosine aminotransferase encoded by the gene TAT. Tyrosine aminotransferase is the first in a series of five enzymes that converts tyrosine to smaller molecules, which are excreted by the kidneys or used in reactions that produce energy. This form of the disorder can affect the eyes, skin, and mental development. Symptoms often begin in early childhood and include excessive tearing, abnormal sensitivity to light (photophobia), eye pain and redness, and painful skin lesions on the palms and soles. About half of individuals with type II tyrosinemia are also mentally retarded. Type II tyrosinemia occurs in fewer than 1 in 250,000 individuals.
Dr Longo informed us that there are less that 100 cases of tyrosinemia type 2 reported worldwide. I have four of them.. I am so thankful that Presley was diagnosed when she was (at 13months) and that Sam, Dylann and Hadley were diagnosed at birth. They are on a low-protein diet and are doing great!!