The Ivers Fam: Dylann is Three

Monday, June 7, 2010

Dylann is Three

My Baby Dylann turned THREE!! I can't believe how fast they grow up it makes me sad... She is the sweetest little girl and we don't know what we would do without her!!

We had a party for her at the park it was nice and HOT out!

Here are a few pics..

Three Girls in 3 1/2 years! Yes I am not the smartest but they are totally worth it, well most days!
Many wonder why the extra N on Dylann, well I gave in to the hubs after months and months of nagging (he wanted to name Samantha Dylann don't even get me started on his ideas of boy names) I wanted to make Dylann more feminine so I added an extra N (I was still a little drugged if I recall correctly) but all that really did was confuse people and make them pronounce it wrong!

1 comment:

Matt. Tara. Addi. Roslyn. said...: She really is the sweetest little girl. she's so smiley and loveable!; June 8, 2010 at 9:54 AM

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My Girls Genetic Disorder Tyrosinemia Type 2

Type II tyrosinemia is caused by a deficiency of the enzyme tyrosine aminotransferase encoded by the gene TAT. Tyrosine aminotransferase is the first in a series of five enzymes that converts tyrosine to smaller molecules, which are excreted by the kidneys or used in reactions that produce energy. This form of the disorder can affect the eyes, skin, and mental development. Symptoms often begin in early childhood and include excessive tearing, abnormal sensitivity to light (photophobia), eye pain and redness, and painful skin lesions on the palms and soles. About half of individuals with type II tyrosinemia are also mentally retarded. Type II tyrosinemia occurs in fewer than 1 in 250,000 individuals.
Dr Longo informed us that there are less that 100 cases of tyrosinemia type 2 reported worldwide. I have four of them.. I am so thankful that Presley was diagnosed when she was (at 13months) and that Sam, Dylann and Hadley were diagnosed at birth. They are on a low-protein diet and are doing great!!