The Ivers Fam: little hikers:)

Friday, May 4, 2012

little hikers:)

We took the girls (minus Hads who was with Jill) and my sisters kiddos to hike the Y this last weekend. We love hiking and we are forcing our children to love it as well:)

The whole gang. Poor Dylann forgot her sunglasses she really can't handle the sun.

So tired.

Me and the Cam man.

Dylann getting a little help:)

My sexy man!

At the top enjoying the view!

Sam stole the camera and took a ton of pics I found this gem and had to share!!

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My Girls Genetic Disorder Tyrosinemia Type 2

Type II tyrosinemia is caused by a deficiency of the enzyme tyrosine aminotransferase encoded by the gene TAT. Tyrosine aminotransferase is the first in a series of five enzymes that converts tyrosine to smaller molecules, which are excreted by the kidneys or used in reactions that produce energy. This form of the disorder can affect the eyes, skin, and mental development. Symptoms often begin in early childhood and include excessive tearing, abnormal sensitivity to light (photophobia), eye pain and redness, and painful skin lesions on the palms and soles. About half of individuals with type II tyrosinemia are also mentally retarded. Type II tyrosinemia occurs in fewer than 1 in 250,000 individuals.
Dr Longo informed us that there are less that 100 cases of tyrosinemia type 2 reported worldwide. I have four of them.. I am so thankful that Presley was diagnosed when she was (at 13months) and that Sam, Dylann and Hadley were diagnosed at birth. They are on a low-protein diet and are doing great!!