The Ivers Fam: Happy Halloween!

Tuesday, November 1, 2011

Happy Halloween!

Well I wouldn't say this was the best halloween ever, but the girls seemed to enjoy it so I guess it was a success.

It was kind of a crazy day for me...mondays are always crazy anyways. I have tests to take and shane has his 12 hour shift at the hospital and Hadley had a double ear infection. all I can say is thank freaking goodness for the antibiotic shot she got, it was a lifesaver! I took the girls trick or treating with Brandon in Jill's neighborhood it was just fantastical:)

2 lady Bugs, a pirate and a fairy:)

Getting ready to go

Auntie Jill and Hads

Don't mind the double chin..I know its' pretty awesome.

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My Girls Genetic Disorder Tyrosinemia Type 2

Type II tyrosinemia is caused by a deficiency of the enzyme tyrosine aminotransferase encoded by the gene TAT. Tyrosine aminotransferase is the first in a series of five enzymes that converts tyrosine to smaller molecules, which are excreted by the kidneys or used in reactions that produce energy. This form of the disorder can affect the eyes, skin, and mental development. Symptoms often begin in early childhood and include excessive tearing, abnormal sensitivity to light (photophobia), eye pain and redness, and painful skin lesions on the palms and soles. About half of individuals with type II tyrosinemia are also mentally retarded. Type II tyrosinemia occurs in fewer than 1 in 250,000 individuals.
Dr Longo informed us that there are less that 100 cases of tyrosinemia type 2 reported worldwide. I have four of them.. I am so thankful that Presley was diagnosed when she was (at 13months) and that Sam, Dylann and Hadley were diagnosed at birth. They are on a low-protein diet and are doing great!!